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plaquenil

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Prednisone Withdrawl?

so i got permission today from my doctor to come off the prednisone steroid to “see how i do without it.” i’ve been on only 5mg a day for the past almost-three months. i’ve read a lot about how you shouldn’t just stop taking prednisone as your body’s glands go into shock without the help of the steroid and you can experience fatigue and other pretty awful symptoms for awhile… basically predisnone withdrawl.

that said, does anyone have advice on what i should do? doctor says just go right from 5mg to 0 tomorrow, but i’m thinking of cutting down to 2.5mg per day for the next week, and then 0 after that. keep you posted on what and how this changes things. i’ve been symptom free for so long i have no idea if its the prednisone or the plaquenil working, here’s to hoping :)

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Vacation = Nodules, Fatigue & A Wealth Of Knowledge

it’s been awhile since i’ve written anything about how i’m feeling but a lot has changed. at least a lot for me.

right after i found out my blood type i went to florida for a family wedding. it was an awesome weekend, but emotional for me on the ra level. my cousin (the bride) and i shared a few airport arrival tears upon her finding out about my diagnosis. as one of the females on my dad’s side with multiple autoimmunes, she understood and felt my sadness. basically, these tears officially initiated me into our private female-only family club.

the weekend got a bit more overwhelming when i noticed what was probably nodule on my back right heel/achilles tendon. it was an overwhelming feeling to look down, see one heel looking red and pretty oddly shaped while at lunch with my family on the beach. i will admit, i freaked out a bit and teared up in front of everyone. i’m not used to seeing my body just “deform” overnight. thinking back, that tendon had been bothering me the days prior — i kept circling out my ankle to loosen stiffness i’d been feeling. the nodule went away after a few days as did the stiffness in the tendon… this is just something i need to learn to expect.

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Done With Month One

originally posted may 25, 2012

it’s been exactly a month since i received my diagnosis for RA, and i have to say, i feel pretty great.

my rheumatologist put me on prednisone taper (20mg for one week, then 15mg, then 10mg, then 5mg). i noticed the drug kick in right away but was a little nervous about the side effects — everyone said i’d be hungry to the point of no return, gain weight because of it, and feel whirly or unable to sleep. all i really felt was the sensation of my heart beating rapidly and as if it were coming out of my chest when i’d do any sort of physical exertion (even walking up stairs or down the hall quickly). some nights i didn’t pass out on the couch as early as i normally would, i’d be up until i fell asleep easily around midnight. after i tapered down to 15mg and especially to 10mg, i didn’t notice the heart beating anymore, nor did i notice evening awakeness. i pretty much seemed like my normal self.

that said, i am continuing on the 5mg now. some mornings i wish i were still taking 10 (which my doctor said i could do as needed but i haven’t). now that i’m down to 5mg, i notice a bit of swelling in a few of the knuckles that gave me the most problems originally and the tingling feeling in my feet is sometimes present for just 3-4 steps when i get out of bed. such a significant and total improvement from where i was four weeks ago when i could barely walk for hours upon waking up. i’ll take it!

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