there’s a lot going on and yet nothing going on at the same time but for some reason there is more than enough to say.
when i went off the prednisone completely, symptoms in my right foot (mass/nodule) and right knee came back within 48 hours. i also noticed a bit of swelling in my knuckles in the evenings. enough that i decided to go back on the 5mg prednisone every day.
when i went in for my check up, dr. d basically told me that meant the plaquenil wasn’t working and i needed to try something else (i questioned this beacuse plaquenil is said to take 3-6 months to kick in and it had only been barely 3). since i am 100% against taking/trying methotrexate (i.e. cancer drug mentioned in previous posts with nasty side effects that you cannot drink while taking), he suggested sulfazalazine. sure. why not.
so today i’m not feeling so hot. yesterday i woke up and the “mass” in my foot was really hurting and bruised again, although not swollen at all. i also took off my ring due to knuckle swelling and took 10mg of prednisone instead of 5.
today, i’m back at work after the long weekend and feeling a bit apathetic / fatigued especially now that it’s the afternoon. dr s asked me if i ever feel fatigued when i met with him on friday and i told him i literally wasn’t sure how to answer that because i honestly don’t know the difference between normal tiredness and fatigue (soooo he put it in my chart anyway). now that i’ve googled the symptoms, i’m thinking this is all prednisone-related mixed with lots of change in the atmosphere at work as of late. definitely interesting to note that i’m not sure what caused me to feel this way today since i had a great weekend and woke up feeling good physically and mentally. not really sure what to think, but i do know i don’t really feel like myself today and it’s bumming me out.
i went to a new private care doctor on friday. i needed someone close to home and the family doctor i grew up seeing was picked by my parents and i dont think i ever even met him.
i asked around for recommendations from fellow yoga teachers at the studio where i teach, knowing yogis who are also moms with kids and husbands must have a good private practice they trust.
sure enough, i got a high recommendation for a guy right down the street from my apartment, dr. spinola. he didn’t have new patient appointments available until october but upon hearing that i was recently diagnosed with ra, he took me on as a patient immediately. a great sign i chose well.
originally posted may 25, 2012
it’s been exactly a month since i received my diagnosis for RA, and i have to say, i feel pretty great.
my rheumatologist put me on prednisone taper (20mg for one week, then 15mg, then 10mg, then 5mg). i noticed the drug kick in right away but was a little nervous about the side effects — everyone said i’d be hungry to the point of no return, gain weight because of it, and feel whirly or unable to sleep. all i really felt was the sensation of my heart beating rapidly and as if it were coming out of my chest when i’d do any sort of physical exertion (even walking up stairs or down the hall quickly). some nights i didn’t pass out on the couch as early as i normally would, i’d be up until i fell asleep easily around midnight. after i tapered down to 15mg and especially to 10mg, i didn’t notice the heart beating anymore, nor did i notice evening awakeness. i pretty much seemed like my normal self.
that said, i am continuing on the 5mg now. some mornings i wish i were still taking 10 (which my doctor said i could do as needed but i haven’t). now that i’m down to 5mg, i notice a bit of swelling in a few of the knuckles that gave me the most problems originally and the tingling feeling in my feet is sometimes present for just 3-4 steps when i get out of bed. such a significant and total improvement from where i was four weeks ago when i could barely walk for hours upon waking up. i’ll take it!